Jennifer's Cancer Journey

 Can I just say that the MD Anderson Acute Care Clinic is top notch! My final rodeo shift did not go as planned. I went and gave it my all, but left early. I had been in pain for a few days. However, when I got home and took my temperature, I knew something was up. According to my paperwork, 100.4 is an ER visit. I was 100.3. I called the number I was given. They told my my temp was borderline, but given my pain, I needed to be seen. So...back in the car around midnight to head all the way back to the same area I had just come from. Marc did not want to go. He wanted to send Hannah with me, but I objected. If I am given bad news, I want to filter it before presenting it to my kids. He reluctantly got in the car to go with me.  I dropped myself off at the entrance and sent him to park. They took my vitals, gave me an ekg (my heart rate had been at about 100 all day and was 118 at check in), and then took me to my room. They took all my blood and set me up with fluids and tyleno...

  Adding in a photo that I like and having a wish I was there moment...also, because when I share this, I can't choose the photo that I want to show up.  Today is the day! I am here. I have had my blood work done AND a video call with my doctor. I have developed Neutropena. Thankfully, it will not stop my infusion this time. My ANC was 1.25. It should be above 1.5, but we will proceed with chemo unless is it 1 or below. Prayers that it never drops that low. I do not want any delays! There were so many "LOW" values on my results. They are also changing my nausea premed in hopes that it helps more than zofran. Going in, I would like to think I know what to expect, but who really knows.  UGH...the 30 minute infusion of the Irinotecan feels like pure torture! I feel like I am frying from the inside and I think it has only been 10 minutes! I logged into MyChart to look at my test results. Sometime this morning my bill has been updated. It was nice only seeing small payments th...

I have had a lot more information thrown at me since my last update, which was Wednesday. Before I get to the update, I am going to give a PSA. March is Colorectal Cancer Awareness Month. If it can happen to me, it can happen to anyone. If you are reading this, you are likely over the recommended screening age of 45. Don't put off getting checked. I would have still had cancer if I was screened at 45 as opposed to 48, but I probably wouldn't be stage 4 right now. That being said, I think I was already 45 when the age changed. To my children, who may or may not read this now or at some point in the future, you are supposed to start screening at 35. You are high risk. My only indication something was wrong (until about 2 months before I was diagnosed) was anemia.  So, where did I leave off? UGH...the CT Scan...that was an experience that I would prefer to never have again, but apparently, it's protocol. When the CT was over, I had to wait about an hour and a half for my pump ...

 Monday...I have a new reason to hate every other Monday. I started my morning nice and calmly working from home, yet dreading what was to come. Once it was time, I packed up my laptop and headed to the infusion center. I started with bloodwork. Thankfully, it was good to proceed. Of course the first test to come back was the pregnancy test. I had to laugh! Last year it was a running joke, because that test always showed up on Tuesday mornings during out staff meeting. I would open it up and declare with a sigh of relief that I was not pregnant. The people who were not in on that joke would look at me funny. All of my other blood came back as expected, except the CEA. It of course had risen since my appointment on the 12th. Not shocked, but didn't like seeing the jump from 9. something to 13. something. This being my first visit and time with some of these drugs, I got a lot of info thrown at me. This pump is different from the one at Methodist, so I had to watch some troubleshooti...

  I feel like everything is moving at warp speed, yet at the same time, things are moving so slowly. It has been less than 3 weeks since I found out my cancer returned and spread. I want things to move quickly so we can get a handle on this before it gets worse, but I  also want to feel like I can catch my breath some. In case you missed it, chemo starts on Monday.  Quick recap...Meet with an oncologist at MD Anderson on Monday. Chemo is set with Folfiri + Avastin. It seems like MD Anderson ran a crap load of tests. I have been getting "Test Results" texts and emails all week. One of those tests was a UGT1A1 Phenotype test. My result is "Abnormal" which means I am an intermediate metabolizer. This means that I have a higher risk of jaundice or toxicity with the irinotecan. Yay me! They also reread my CT scan from February 4. They agreed with the adenexal mass, which they are calling 7 cm. They noted the deposit in my signmoid messentary as we...

 I had my appointment today. It went well. For those who don't want to read all of my word vomit, I start chemo on Monday.  For those that are ready for my novel, here ya' go!  The nerves...I thought I had a really good handle on all of my past anxiety issues. This past week  has been rough. My anxiety has been next level. Yesterday I woke up at 4am and couldn't go back to sleep. Today it was 3am. That makes for a tired and cranky Jen. Add that to the extra fatigue-y feeling that I have had, which is probably my body working extra to fight against this stupid cancer, and I am wiped by the end of the day. Yet, I am so amped up that I can't sleep. It is a vicious cycle. Let me tell ya' though. I have felt the love and the prayers. Sunday morning, some one had stopped me before I even made it to my desk. He prayed right then and there. I had that happen several times before I had even been there an hour...hallway, stairway, bathroom... I even had someone pray and use a...