Warp Speed

 


I feel like everything is moving at warp speed, yet at the same time, things are moving so slowly. It has been less than 3 weeks since I found out my cancer returned and spread. I want things to move quickly so we can get a handle on this before it gets worse, but I  also want to feel like I can catch my breath some. In case you missed it, chemo starts on Monday. 


Quick recap...Meet with an oncologist at MD Anderson on Monday. Chemo is set with Folfiri + Avastin. It seems like MD Anderson ran a crap load of tests. I have been getting "Test Results" texts and emails all week. One of those tests was a UGT1A1 Phenotype test. My result is "Abnormal" which means I am an intermediate metabolizer. This means that I have a higher risk of jaundice or toxicity with the irinotecan. Yay me! They also reread my CT scan from February 4. They agreed with the adenexal mass, which they are calling 7 cm. They noted the deposit in my signmoid messentary as well another 1.3 cm deposit in my LUQ. Sigh... Thankfully, there is still only 1 liver nodule. I am to the point where I expect every new text or email to be coming from MD Anderson.


Right now, the plan is for me to show up at MD Anderson in the Woodlands at 11:30 for bloodwork. If you have followed my journey for a while, then you know that this determines whether or not I get to have the chemo. I do not anticipate low white blood cell counts this early in the game. I don't know if I hang around or what, because my infusion appointment is at 1:00. I should be done around 4:30. That reminds me, I need to get my 'just in case' meds picked up from HEB. Nevermind, they aren't ready yet. One is delayed 2 business days. The other has been called in twice, but still not on my list. This could be bothersome. Those are the ones that I will likely need most. The plan WAS to go in over lunch in Katy for my disconnect. My plan was great. I could do this over lunch break. Well...My Chart burst that bubble. They scheduled another chest, abdominal, pelvic CT for Wednesday morning before disconnect. UGH. I did not want to have to take sick time for this. I have to show up at 11:25 and drink all of the flavored stuff again. Total time...2.5 hours, then on to get disconnected. Guess it will be an extended lunch. 


Can I say that I am really dreading the CT. I don't want it. I don't want to know what they find. I don't want it to be bad. It will have only been 3 weeks since the last one, but it's 3 weeks without treatment while things are likely growing. I do not want more cancer spots in my body. I just want it to all go away. I want the other one to be wrong. I want to be good and cancer free. 


Which am I dreading more? Chemo or another CT?  I don't know!


Yet, I may not get the CT on Wednesday anyway. I did get a call saying that is needs insurance preauthorization. We are still waiting on it. If we don't get the ok, it will be cancelled. I don't know if I want that either? Maybe I want some time for chemo to do its thing before looking to see how bad it is. I just need insurance to do its thing and approve it all. 


I really just want to live my life...the one that I have been rebuilding since chemo finished in August. Things have just been going so well. I don't want a bad ending. I don't want to be knocked out by chemo. I want to live and do all of the things. 


It's not fair!


I know, I know...life is not fair. I used to tell my kids that while they were growing up if they complained. What did I do to make it come back? I know nothing, it just happens, but that is not comforting. I need to change my mindset and not dwell on all of that.  


I am ready to start chemo and start kicking the cancer out of my body. Yet, I am also dreading it. 


I am so thankful for all of the prayers and the people who have taken time to cover me in prayer. 


I think I used to end my updates with specific requests for the rounds...


Please pray for this next/first round of chemo. Please pray for minimal side effects and toxicity. Please pray it does not knock me down right away. I do not plan on doing an in the moment/all day post like I did for Round 1 of Round 1. It is linked there- just in case you missed it. Please pray for my stamina. Please pray for no severe diarrhea. Please pray that I don't lose all my hair.  Please pray that this regimen will kill and shrink everything. Please pray the CT will not show more tumor deposits or substantial growth. This one is a biggie...please pray the insurance is not a hinderance. Please pray for favor in my case so we are not having to argue every step of the way. Please pray that I am indeed a surgical candidate. I meet with one surgeon on Friday and another on the following Monday. Please pray for peace throughout this whole process. 


I would love to warp speed through all of the hard parts and come out on the other end healthy and whole. 

Comments

  1. 🙏🙏🙏🙏🙏

    ReplyDelete
  2. continued prayers for healing and strength. Take every thought captive.

    ReplyDelete
  3. Prayers, love and hugs!!

    ReplyDelete
  4. Praying, truly so hard. My heart is broken for you. May God give you His strength, His comfort, His faith, His love, His grace to walk through this very hard thing. It certainly isn’t fair❤️‍🩹

    ReplyDelete

Post a Comment

Popular posts from this blog

What is Wrong with me?

This is not the update I wanted to give you...

The time in between...